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A shawl And The Story Behind It. 

This shawl was made with a yarn cake that is 50% Acrylic and 50% Cotton. The yarn cake itself was made in Germany. The cake was made by a small home business owner. Her “company” name is Little Favorites By Rea. She does have a Facebook page, and a website you can order yarn cakes from.  
When my nana was told to begin dialysis, I found 1 person who reached out to me. I met her on a Facebook group. She helped me with EVERYTHING I needed to know in beginning the new lifestyle my grandmother needed. When I had any questions about anything, she was the only one who was straight forward with me and didn’t sugar coat anything. 

There is one specific moment that I recall every time I think of her. My grandmother was cramping during treatments for several treatments. We had not been doing it at home more than 4 months at this point. I had questions about how to help my grandmother. It wasn’t the pulling of fluid that caused it. Her blood pressure was above average (normal for her). So I knew I wasn’t pulling off too much, which could have caused dehydration. (Bottomed out blood pressure or a pulse difference of 20 when standing vs. when sitting; is a symptom of dehydration.) This new friend of mine suggested maybe turning up the heat on the dialysate solution. I hadn’t thought about that, but I figured I might as well attempt it to see if it worked. The nurses at clinic suggested a saline push. Which adds extra fluid, and makes her blood pressure even higher. I couldn’t let her blood pressure get higher. It would have ended up very, very badly. 

It worked. My grandmother was cramping  because she was cold. That was one of the things, I would have never thought to check. We didn’t turn it up completely, but just enough. 

The words I can say, will never be enough to thank her for all that she has done. 

Green is the color of the Kidney Disease Awareness Ribbon. Kidney disease is what connects her and I. I hope that she will wear it to dialysis to keep her shoulders warm. If she doesn’t, I understand. I just enjoy the thought of her wearing it and knowing she has some one who thinks of her. She was put into my life for a reason. I dearly appreciate all of her help through the journey.

I hope you all have a good night/ day. 🙂 

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Latest Update

My grandmother passed on October 10th. Her oxygen machine was picked up 3 days ago, and today her dialysis machine was picked up. It’s beginning to feel real now. I’m struggling to keep myself busy. I have been crocheting for therapy. I’m working on an Extra Large Shawl for an order. It’s almost done, and then I suppose I’ll start the next one. It’s hard going from being super busy all the time to having nothing to do at a drop of a hat. I haven’t grieved yet. 5 days after her passing, I got a call from my mom at 3:30 am. My stepfather committed suicide in their closet. She was the one to find him. I hope you all can keep us in your prayers, send good thoughts, good vibes whatever your thing is. His funeral was yesterday and the planning of both services kept me quite busy for 2 weeks. It doesn’t help that my mom was told she needed to be out of the house within 2 weeks. We did a lot of cleaning, and got everything out. Very stressful times lately. Best wishes to my readers. Hopefully, I will find motivation to educate people on dialysis and showing off my crochet. 

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I’m writing from the ICU

It’s 6:39am and I’m writing from the ICU room. My grandmother went into some kind of “arrest” and actually ended up passing. She was revived 3 times in the 20 minute ambulance ride to our little podunk hospital where they stabilized her. She was soon transferred to a major hospital. She’s now on a ventilator, and unable to breathe on her own. 
Things happen people. Randomly. We had no warning signs besides shallow breathing. She said she was having slight shallow breathing and needed dialysis. I started setting up the machine, decided I would do it Sunday night and give Monday off. Not even 20 minutes later my O2 monitor read 43 and I watched her eyes roll backwards in her head. We still have no answers for what happened. They are treating for a couple things based on symptoms but not labs or tests. Please keep us in your thoughts and prayers. We are scared and worried. 

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A Lot In Life Has Changed In My Life

Well Hello!

I’ve been absent from “blogging” for quite awhile. Why? Because life has simply taken drastic turns. We (nana and I) are still doing dialysis 5 out of 7 days a week. Her labs have been a lot better lately, and she’s also been controlling fluid intake properly. She’s received a lot of good news from the doctor.

I got married on May 20th. I’m now officially married. It doesn’t feel any different than it did before. I can’t wait for the many more years to come.

My father in law was re-diagnosed with cancer in November of 2016. We’ve been battling that since then. He will soon be entering palliative care. As a family, we are still trying to come to terms with everything. We’ve been struggling since we’ve gotten the latest estimate on time left.

Palliative care is worth looking into for all chronic illness sufferers. When researching, be sure to remember; All hospice care is palliative, but not all palliative care is hospice. Palliative care is available to people with COPD, heart and lung failure, cancer, ESRD, and many other conditions. It does not mean that your life will end.

 

Be sure to check out my Etsy: Aftonsafghans I’ve posted several new listings, and plan to add several more soon. If there’s something you think I should list, that is not already listed, let me know! I also do custom orders, and depending on size of the item, I do rush orders as well. One of the listings added was for a Dialysis Fistula Sleeve Cover. Do to it being so many listings, I will avoid adding photos.

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Dialysis is driving me crazy.

Dialysis is driving me crazy.

 

3 weeks ago we replaced the pureflow control unit, because ours failed a conductivity test. I primed one pak and made one sak, and when I went to do the next sak it said pak exhausted. I put our back up one in it and it wouldn’t prime the pak. Nxstage sent more, and a USB drive to pull the information from our machine. We went through about 4 paks before they decided to replace the control unit, again. So far I’ve primed a pak and made a sak. Hopefully this one works decently for a while. I can’t stand hanging bags everyday.  And I have social anxiety so I hate talking on the phone! And I was on the phone with them at least once a day.

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Strawberry High Protein Fruit Smoothie Recipe

Renal and renal diabetic food choices

  • 2 meat
  • 1 fruit, medium potassium
  • 1/2 high calorie

Carbohydrate choices

1-1/2

Helpful hints

  • Pasteurized liquid egg white is safe to consume without cooking.
  • If substituting frozen fruit add 1/4 cup water instead of the 1/2 cup ice. The degree of “frozenness” will determine how much your blender will be able to take. It will also give a more “soft serve” consistency than a smoothie, which is great in the warmer season.
  • Adjust sugar or low calorie sweetener to taste.