I’m writing from the ICU

It’s 6:39am and I’m writing from the ICU room. My grandmother went into some kind of “arrest” and actually ended up passing. She was revived 3 times in the 20 minute ambulance ride to our little podunk hospital where they stabilized her. She was soon transferred to a major hospital. She’s now on a ventilator, and unable to breathe on her own. 
Things happen people. Randomly. We had no warning signs besides shallow breathing. She said she was having slight shallow breathing and needed dialysis. I started setting up the machine, decided I would do it Sunday night and give Monday off. Not even 20 minutes later my O2 monitor read 43 and I watched her eyes roll backwards in her head. We still have no answers for what happened. They are treating for a couple things based on symptoms but not labs or tests. Please keep us in your thoughts and prayers. We are scared and worried. 


A Lot In Life Has Changed In My Life

Well Hello!

I’ve been absent from “blogging” for quite awhile. Why? Because life has simply taken drastic turns. We (nana and I) are still doing dialysis 5 out of 7 days a week. Her labs have been a lot better lately, and she’s also been controlling fluid intake properly. She’s received a lot of good news from the doctor.

I got married on May 20th. I’m now officially married. It doesn’t feel any different than it did before. I can’t wait for the many more years to come.

My father in law was re-diagnosed with cancer in November of 2016. We’ve been battling that since then. He will soon be entering palliative care. As a family, we are still trying to come to terms with everything. We’ve been struggling since we’ve gotten the latest estimate on time left.

Palliative care is worth looking into for all chronic illness sufferers. When researching, be sure to remember; All hospice care is palliative, but not all palliative care is hospice. Palliative care is available to people with COPD, heart and lung failure, cancer, ESRD, and many other conditions. It does not mean that your life will end.


Be sure to check out my Etsy: Aftonsafghans I’ve posted several new listings, and plan to add several more soon. If there’s something you think I should list, that is not already listed, let me know! I also do custom orders, and depending on size of the item, I do rush orders as well. One of the listings added was for a Dialysis Fistula Sleeve Cover. Do to it being so many listings, I will avoid adding photos.

dialysis, Uncategorized

Dialysis is driving me crazy.

Dialysis is driving me crazy.


3 weeks ago we replaced the pureflow control unit, because ours failed a conductivity test. I primed one pak and made one sak, and when I went to do the next sak it said pak exhausted. I put our back up one in it and it wouldn’t prime the pak. Nxstage sent more, and a USB drive to pull the information from our machine. We went through about 4 paks before they decided to replace the control unit, again. So far I’ve primed a pak and made a sak. Hopefully this one works decently for a while. I can’t stand hanging bags everyday.  And I have social anxiety so I hate talking on the phone! And I was on the phone with them at least once a day.


Strawberry High Protein Fruit Smoothie Recipe

Renal and renal diabetic food choices

  • 2 meat
  • 1 fruit, medium potassium
  • 1/2 high calorie

Carbohydrate choices


Helpful hints

  • Pasteurized liquid egg white is safe to consume without cooking.
  • If substituting frozen fruit add 1/4 cup water instead of the 1/2 cup ice. The degree of “frozenness” will determine how much your blender will be able to take. It will also give a more “soft serve” consistency than a smoothie, which is great in the warmer season.
  • Adjust sugar or low calorie sweetener to taste.
crochet, dialysis

Why I’ve been absent

Sorry that I’ve been absent and haven’t been able to provide you guys with any new and useful information. My wifi went out for several weeks, and that left me with no way of getting on here. I apologize for that. We’ve been extra busy lately with dialysis and my crochet orders. I’m working on a blanket at the moment for another crocheter, who doesn’t have the time to do it on her own.


I’ve also been trying to get my patterns out there more, so that I can continue to help support my family.

dialysis, Uncategorized

Dialysis Patients and Temperatures

This does not substitute medical advice from your doctor. If you feel like something is wrong or off, contact them. They are more knowledgeable, well some of them anyway.

If you are a dialysis patient, you most likely know that your temperature runs a little lower than normal people. For example, grandma’s temp. normally runs about 96.5-97.0 degrees Fahrenheit. If your temperature runs 2 degrees above what it normally does, then that’s considered a fever for dialysis patients. Which in turn could indicate a cold, infection any many other things.

Most people ignore taking their temperature. But I recommend taking it several days to weeks daily, so you know what your “normal” temperature is.

If grandmas reaches 99.2 degrees, we automatically give her something to prevent it going higher and we call the treatment center HHD (Home hemodialysis) nurse, and follow her instructions. If there is redness or the fistula/ graft feels warm to the touch that could indicate an infection in the fistula/graft. I fully recommend seeing your doctor at that point.